3 Study Measure Collection Schema

Timepoint
Study Phase
Instrument File Label Admission Stay Discharge Follow.up Phase1 Phase2 Phase3 Phase4
Functional Assessment Screening Tool (FAST) 1 fast ✓ ✓ ✓ ✓
Repetitive Behaviors Scale Revised (RBS-R) Self Injurious Behavior (SIB) Subscale 2 rbsr ✓ ✓ ✓ ✓
Aberrant Behavior Checklist (ABC)3 abc ✓ ✓ ✓ ✓ ✓ ✓ ✓
Difficult Behavior Self-Efficacy Scale (DBSES) dbses ✓ ✓ ✓ ✓ ✓
Parenting Stress Index 4th Edition Short Form (PSI-SF-4) psi ✓ ✓ ✓ ✓ ✓
Emotion Dysregulation Inventory (EDI) edi ✓ ✓ ✓ ✓ ✓ ✓
ADDIRC Intake Demographic Medical Form 4 addirc_intake_demo_med ✓ ✓ ✓ ✓ ✓
Subject Enrollment Info 4 enrollment ✓ ✓ ✓ ✓ ✓
Social Communication Questionnaire Lifetime (SCQ) scq_lifetime ✓ ✓ ✓ ✓ ✓
Behavior Problems Inventory bpi ✓ ✓
Children’s Sleep Health Questionnaire 1 (CSHQ-1) cshq1 ✓ ✓
Children’s Sleep Health Questionnaire 2 (CSHQ-2) cshq2 ✓ ✓
Open-Source Challenging Behavior Scale (OS-CBS) oscbs ✓ ✓
Parent Rated Anxiety Scale (PRAS) pras ✓ ✓
ADDIRC Diagnostic Behavioral Summary 4 addirc_dx_beh_summary ✓ ✓ ✓ ✓ ✓
ADDIRC Inpatient Data 4 addirc_inpatient_data ✓ ✓ ✓ ✓ ✓
Autism Diagnostic Observation Schedule (ADOS) ados ✓ ✓ ✓ ✓ ✓
Leiter 3 leiter_3 ✓ ✓ ✓ ✓ ✓
Augmentative and Alternative Communication (AAC) aac_parent ✓ ✓ ✓
Behavioral Blood Data with ABC blood_draw_information_form ✓ ✓ ✓
Vineland-II vineland_2 ✓ ✓ ✓
Child and Adolescent Symptom Inventory 5 (CASI) casi_5 ✓ ✓
Sleep observation sleep ✓ ✓
Child Behavior Checklist (CBCL) for ages 6-18 cbcl ✓ ✓ ✓ ✓
Peabody Picture Vocabulary Test (PPVT) ppvt ✓ ✓ ✓
Vineland-3 vineland_3 ✓ ✓ ✓
Physio Medication Record physio_med_record ✓ ✓
Puberty Questionire puberty ✓ ✓
2 Month Followup addirc_2mo_followup ✓ ✓
Note:
This table represents the planned schema for study measure collection. Some measures were administered outside their designated phases for a small number of participants (<10) during transition periods.
Footnotes:
1 fast was completed by caregiver during ‘admission’ (phase 1) and staff during ‘stay’ (phase 1, 2)
2 rbsr was completed by caregiver during ‘admission’ (phase 1) and staff during ‘stay’ (phase 2)
3 abc subscales differed by timepoint: full abc was collected during ‘admission’; only hyperactivity and irritability subscales were administered during ‘discharge’ and ‘follow-up’
4 Some variables were dropped between phases 1/2 and 3/4